The Life Of Riley - Ahmad Alomari On Discovering CLOVES Syndrome

Dr. Ahmad Alomari discusses some of the challanges associated with establishing a new syndrome or disease in the medical community. Dr. Alomari is a radiologist at Children's Hospital Boston.For more information about this amazing discovery and the story of a young girl living with CLOVES go to

Riley is like most other kids. She likes to swim, read, dance and sing. However, the one thing that makes her different than most kids is she was born with an incurable syndrome that makes what she calls lumps and bumps -- and what doctors call malformations -- grow on and in her body. Riley has CLOVES, and in a special CommonHealth/WBUR series, The Life of Riley: A Rare Girl, A Rare Disease, we'll tell the story of a remarkable nine-year-old girl born with a one-in-a-million disease that creates increasingly aggressive lumps and bumps on and in her body. The only treatment, so far, has been surgery. But right now (2012), at Children's Hospital Boston, Riley is trying an experimental drug that may—or may not—help her. We'll be following her journey and you can too at